It has been so nice having Paul home. Christmas was great! He is doing much better at home. He has only thrown up one time since he has been home....that was because he ate too quickly. He has to eat really slowly (little bits at a time). I have managed to get around 1500 calories a day in him for the past 2 days. Obviously, we need to get him to more like 2800-3000 calories a day to maintain his current weight at 181 pounds (then we can get him off of TPN). He weighed 192 lbs. the day of his surgery. He is on TPN 24 hours a day...this helps him get the nutrition he needs. He needs to be as strong as possible for the upcoming chemo!
I feel like I am becoming a pretty decent nurse...I have to flush his J-tube twice a day...I am getting really good at flushing out his PIIC lines...attaching his TPN...changing his dressings around his J-tube, etc...Actually, it isn't really that hard, just can be a little time consuming. It is kind of a process to get him showered!
We are so grateful for all the help that we have received from family and friends. We truly have been blessed! We love you all!
Chasing after a spunky, OCD, six-year-old...socializing an nine-year-old with Asperger's...fighting cancer with husband...picking up the never-ending dog poop...while trying to make jewelry, scrapbook, create crafts, and be "Suzy Homemaker"! What's your time and season?
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